AZ Central

He's the oldest-known man with rare Proteus syndrome and he hopes to help find a cure

Corrections & Clarifications: A previous version of this story incorrectly described one of Jerry DeVries' surgeries. Jerry DeVries’ body is constantly changing on him. When he removes a custom molded ...
Business Wire

ArQule Announces Publication of Clinical Data with Miransertib in Proteus Syndrome

Proteus syndrome is an ultra-rare condition characterized by the aberrant overgrowth of multiple tissues of the body. Patients with Proteus syndrome experience changes in the shapes of certain body ...
Business Wire

ArQule Announces First Patient Dosed in Registrational MOSIAC Trial of Miransertib for the Treatment of Proteus Syndrome and PIK3CA-related Overgrowth Spectrum

BURLINGTON, Mass.--(BUSINESS WIRE)--ArQule, Inc. (Nasdaq: ARQL), today announced that the first patient was dosed in the registrational MOSAIC (Miransertib in Overgrowth Syndromes in Adults and ...
KRDO

‘Steers and Beers’ an event to raise awareness for Proteus Syndrome; a genetic growth disease

COLORADO SPRINGS, Colo. (KRDO) -- A mother in Colorado Springs is using her own tragic experience with loss to raise money for a worthy cause this weekend. Kim green lost her son Alex to Proteus ...