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Check out this video: Grace shares how scleroderma shaped her life and fundraises for a cure 🎥 At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events, and inspiring others to get involved in the search for better treatments and, one day, a cure. Alongside her parents, Brian and Pamela, Grace is partnering with Jeep Jamboree USA to shine a light
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During a recent Stepping Out to Cure Scleroderma walk, we wanted to know: what motivates our community to step out and show up? We asked our incredible participants, and the answers were nothing short of inspiring! From honoring loved ones to raising awareness, every step is a step closer to a cure. 💙 What’s your reason for stepping out? 💬 #NationalSclerodermaFoundation #SteppingOut #Scleroderma | National Scleroderma Foundation
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Want to learn how to ease some scleroderma symptoms without medications? Check out this 2024 Patient Forum highlight 🎥 In this clip from the 2024 Patient Forum, Dr. Ankoor Shah (Associate Professor of Medicine, Duke University) reviews options for the non-pharmacological management of systemic sclerosis. His session covers innovative approaches for managing Raynaud's Phenomenon, digital ulcers, GI symptoms, joint pain, contractures, and fatigue. To learn more about symptom management in systemi
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